Okay, I just had to share this jewel with you guys... You know that you have problems when they make you wear one of these bracelets when you go to the doctor! Pretty funny.
Tubby
Sweet boy
Chloe Bear
Chloe as a baby!
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Sweet boy
Chloe as a baby!
Living with Dysautonomia and Chronic Illness
Sweet boy
Chloe as a baby!
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Why am I doing this?
I have been severely ill for 8 years. I was an active, healthy 26 year old emergency veterinarian loving life and my job. Everything crashed to a halt after a cat bite landed me in the hospital for a few days on IV antibiotics. Severe dizziness, fatigue, pain, and fainting were soon to follow. I had to take medical leave 3 months after I first became ill and was never able to work again.
It took more than 30 doctors, 2 years, and a trip to the Mayo clinic in Minnesota to finally get diagnosed with Postural Orthostatic Tachycardia Syndrome, or "POTS", a type of dysautonomia. I am still severely disabled, but fighting tooth and nail to get better every day. I want this blog to be a resource for others who have chronic "mystery" diagnoses or other chronic disorders that need help organizing their life again.
It took more than 30 doctors, 2 years, and a trip to the Mayo clinic in Minnesota to finally get diagnosed with Postural Orthostatic Tachycardia Syndrome, or "POTS", a type of dysautonomia. I am still severely disabled, but fighting tooth and nail to get better every day. I want this blog to be a resource for others who have chronic "mystery" diagnoses or other chronic disorders that need help organizing their life again.
Bear with me on this blog because I am ill and will not be able to post as regularly as a "normal" person can!
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6 comments:
OOoohhh, I haven't gotten one of those yet! That's amusing.
Have you looked at Twitter yet for dysautonomia info? It's helped me learn some new things. My username is beeseason, and I have recently added some dys. folks who have informed me of some things.
I also tweeted your blog and how much I enjoy it. It was the first one I found about this disease when I was diagnosed last year, and your tips about sitting in a rolling chair for kitchen work and many others have helped me so much.
Thanks for your hard work on this site!
Betsy
Ha! Laughing with you not at you. When I was still working I helped form a falls risk minimisation protocol for out health service. Now I wear the bracelet LOL. I do think they should at least give us the option to bedazzle them or something to jazz them up :)
One more thing: do you wear a MedicAlert bracelet? And if you do, do you find it helps? The times I've had to explain my illness to doctors at an ER, or any of my other doctors besides the one who diagnosed me, no one has even known what it was! I'm wondering if it would help me...
Thank you!
Hilarious, right? You gotta laugh. And bedazzling sounds nice...Fall Risk with flare!
Betsy--As far as twitter goes, I have an account (lmbutare) but am pretty bad about ever using it. It's a great idea though. Thanks for tweeting me! And I'm so glad that my blog has been helpful. I wish I could post more often, but it's hard as you know! Also, I don't currently have a medical bracelet, but I've been meaning to get one. It would really be helpful if anything happened without my husband there to explain everything. Currently I can't drive or leave the house by myself, so I've been putting it off I guess. Let me know if you get one and it's helpful. It is definitely on my list of to do's.
haha! yes, i have had those every time i am in the hospital! i get a giant purple piece of paper set on my lap that says 'latex allergy' and a bright band on my wrist that says 'fall risk!'....oh the joys of EDS and POTS! :P hope you are well, my dear! i have been having a rough time, and i have been reading that you are as well. hang in there and keep that chin up. it is just one day at a time! :D
Hope you feel better soon Danielle and thanks for your well wishes. Ah, the lovely roller coaster ride that is POTS!
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