tag:blogger.com,1999:blog-8651943964119399209.post3562852950875453673..comments2023-10-23T15:39:50.048-04:00Comments on Where Did I Get This Lemon?: Raynaud’s Syndrome and POTSLauren Butare-Smith, DVMhttp://www.blogger.com/profile/11946665842214870896noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-8651943964119399209.post-39643389680099518972022-02-02T17:22:09.771-05:002022-02-02T17:22:09.771-05:00I have had a recent diagnosis for HATS and have be...I have had a recent diagnosis for HATS and have been researching this condition and I find that POTS is often linked to it. When I read about POTS, I couldn't believe that something that I had suffered from since the age of 10, but undiagnosed , was being described so accurately!!MY mother suffered from Raynauds disease and that would appear to be linked as well.<br /><br />Just so frustrating that I have waited most of my life for this insightAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-88580781983493202162018-02-27T23:40:39.877-05:002018-02-27T23:40:39.877-05:00I had Raynaud's since my teens. I'm 51 now...I had Raynaud's since my teens. I'm 51 now. I never gave it too much attention because it always clears up when the temperature is right, but when I was 43 I got diagnosed with a potentially deadly autoimmune disease, Wegener's Granulomatosis. It was a do or die kind of decision with the drugs, and the risk was high because the drugs are nasty, but as it turns out they saved my life. I was on chemotherapy for a whole year, as well as steroids (to increase the inflammation) and all the other stuff to counteract the negative side effects of the nasty stuff. I had no idea that autoimmune disease is treated with chemo. Now I know more than most of the doctors in my town. Ha ha. I even got published in a medical journal - and I wasn't a guinea pig, I actually did some of the research without having gone to med school. But that's a different story.<br /><br />The point I wanted to make is that Raynaud's is part of the autoimmune family which affects 1 in 5 people, 3 of 4 of those are female, and has no cure, but being women, we know how to handle it. The treatment took care of my Wegener's (it goes in remission and has come back thrice since, including a flare now, but it always gets taken care of - I hate the meds, but I love life and my daughter and husband way way more... sooooo...<br /><br />The Raynaud's is gone. I haven't had it since that first hard core treatment in 2010. The treatment for the autoimmune disease I was fighting with for my life, actually got rid of my lifelong affair with Raynaud's and also another couple of minor autoimmune issues I had. It's quite amazing really because Raynaud's wasn't my on my radar when Wegener's hit, but I haven't seen it since. I only wanted to post this as you mentioned that chemotherapeutic can be detrimental, and I wanted to share my experience where the chemo and steroids combined actually got rid of it. For the last eight years anyways. Who knows what tomorrow holds, but as of right now, I haven't had it for eight years.<br /><br />Just food for thought. <br />Thanks for this.<br /><br />I only stumbled onto here because a friend's daughter is dealing with POTS, and I thought that because the symptoms seem to be under a similar umbrella, they might be etiologically as well. <br /><br />Thanks.<br />Peace.<br /><br />martamartahttps://www.blogger.com/profile/13570308856192525447noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-41981653080708327122016-01-31T13:54:11.285-05:002016-01-31T13:54:11.285-05:00My friend had it for years without her lazy doctor...My friend had it for years without her lazy doctor diagnosing it. It use to bring her to tears even when it wasn't that cold outside. I am athletic and much older than her. And I also taken herbs and supplements for over 25 years. After preaching to her for months about how the medical profession when it comes to obstruction of the arteries, put to much emphasis on saturated fat turning to plaque. This as opposed to carbohydrates that turn to sugar and harden your arteries which causes diabetes. And also calcium which is hardly talked about at all.Just like iron needs vitamin c to absorb into your blood, calcium regardless of how much you take doesn't absorb in your bones without magnesium and vitamin d3. So as I was looking for the most effective way to dissolve my calcium build up, I realize it could help her as well. I found that magnesium chloride out of all the other forms magnesium can be most effective not just to help calcium asorb from your blood into your bones, but seek out calcium wherever it is in your body and absorb it. My friend started to take magnesium chloride and vitamin d3 daily. Here's the funny part because she's usually always cold. She started to get what appeared to be hot flashes. She even called her mom and asked at what age did she get it. This lasted for about 2 weeks or more. Then all of a sudden it stopped! We came to the conclusion that the supplements were clearing her arteries and vessels to allow more blood flow, and that's the reason she became warmer. This is the first year out of the 7 that I've known her that she didn't complain about being cold or in pain. Flaxseed capsules and liquid also helps to keep blood vessels lucid.RBhttps://www.blogger.com/profile/01597562356543184511noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-8397377775191661222015-12-28T14:16:00.249-05:002015-12-28T14:16:00.249-05:00I have Raynauds disease and Healthyhelp4U made thi...I have Raynauds disease and Healthyhelp4U made this cream that has helped tremendously with the pain that follows the disease. It is used to improve the circulation in hands and feet. This cream is completely natural with no harmful chemicals. I have attached the link below to their website specifically the circulate now cream. <br />http://healthyhelp4u.com/view_details.asp?ID_page=98&ID_cell=214&ID=376&s_type_sub=product&b_submit_by_click_item=&b_buyable=True&n_size=4Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-51051630665553636922015-08-07T08:40:03.252-04:002015-08-07T08:40:03.252-04:00Hey guys, the company i work for Zondo (find us on...Hey guys, the company i work for Zondo (find us on twitter @ZondoHQ) are producing a Self heating glove and insole that regulates circulation and maintains the bodies natural heat in the hands and feet. Our KICKSTARTER is launching this weekend, and shows a testimonial from a Raynauds conference we attended last month. We would really appreciate if you guys would give it a look as it may really benefit you in cold conditions.<br /><br />Thanks<br /><br />Tom AIlesAnonymoushttps://www.blogger.com/profile/15811034968045031956noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-17459544163795806842014-11-08T13:29:36.528-05:002014-11-08T13:29:36.528-05:00I just ran across this site. I have raynauds and h...I just ran across this site. I have raynauds and have found a supplement that helps me be a normal human being. I hardly ever have attacks, and if I do, my body is able to overcome it and restore circulation in minutes not an hour. The supplement only came out in the few months, and it is doing miracles because it has signaling molecules in it that activate our dormant stem cells and cause them to go against the attack. I dont know if I can leave any contact information here or not but its important enough that I will try it. charlene.jones77@yahoo.com Good luck and God bless anyone that might read this. It is a horrible thing to have to live with.Anonymoushttp://www.mywellmed.com/charlenejnoreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-47880511764362797002014-10-18T03:35:19.791-04:002014-10-18T03:35:19.791-04:00Parasites babesiaParasites babesiaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-49328192896818887872013-06-03T21:59:31.232-04:002013-06-03T21:59:31.232-04:00Hello, I was in the third grade with I developed R...Hello, I was in the third grade with I developed Raynaud's also already having POTS something. And easy but in most cases helpful for reducing issues with POTS is increases the salt intake in her diet also staying rested. I live in Wisconsin so staying warm can be a problem at times. The easiest thing I found when raynaud's hit's is running that body part under warm water. In most cases POTS does go away, it did for me. Raynaud's doesn't go away, however in my cases it has not worsed. There is two types of raynaud's primary and secondary. It's important to talk to you doctor about it. I hope everyone the best of luck. Anonymoushttps://www.blogger.com/profile/15341734052411084421noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-33266295165766871672012-11-29T22:42:46.655-05:002012-11-29T22:42:46.655-05:00Thanks. We are fortunate not to be using any medi...Thanks. We are fortunate not to be using any medication to control the POTS so now I am really glad we tried non-pharmaceutical routes first. Momhttps://www.blogger.com/profile/12961458158239287421noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-61991451528054630792012-11-27T10:23:10.349-05:002012-11-27T10:23:10.349-05:00I'm not sure that it will go away if her pots ...I'm not sure that it will go away if her pots improves, but it should be less severe, especially if she is on beta blockers. If she is on a beta blocker, that can definitely increase the severity of raynauds, so if her pots improves enough to get off of them, that may help. Until then, she may want to keep mittens or gloves and hand warmers with her in case it happens again.Lauren Butare-Smith, DVMhttps://www.blogger.com/profile/11946665842214870896noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-32935268198281067242012-11-26T15:10:30.296-05:002012-11-26T15:10:30.296-05:00Thank you for this blog. My daughter has been dia...Thank you for this blog. My daughter has been diagnosed with POTS just a few months ago and today she called me from school saying her hands were blue. Does anyone know if this will go away if her POTS goes away?Momhttps://www.blogger.com/profile/12961458158239287421noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-77896192059174750012012-01-25T10:02:42.525-05:002012-01-25T10:02:42.525-05:00I absolutely know how you feel about touching cold...I absolutely know how you feel about touching cold things. When I have ice cream or anything cold, I have to bundle up in a blanket for hours, especially fingers and toes! I'll have to try mittens some time too because I've only used gloves so far. Thanks for the idea!Lauren Butare-Smith, DVMhttps://www.blogger.com/profile/11946665842214870896noreply@blogger.comtag:blogger.com,1999:blog-8651943964119399209.post-90787059249144146422012-01-24T22:04:54.328-05:002012-01-24T22:04:54.328-05:00I have Raynauds and POTS and well (which is why I&...I have Raynauds and POTS and well (which is why I'm being tested for possible autoimmune causes for my POTS), and the Beta Blockers increased my Raynauds 10 fold! I would touch a cold soda can and my fingers would turn white immediately, it was very painful.<br />I used those little hand warmers in my gloves and socks, which worked well at keeping warm. Also wearing mittens instead of gloves - the heat from my other fingers helped as well.<br />Thanks for the great post!Anonymoushttps://www.blogger.com/profile/16623393323807331606noreply@blogger.com